Robin Scholz
With his ventilator on the left, 1-year-old Bo Porter plays with mom Katey in their rural Urbana home.
It's a chilly April afternoon, and 13-month-old Bo Porter and his mom are curled up on their living room floor, looking at a picture book in their Urbana home.
Bo reaches up to tug something loose near his neck, and Katey Porter quickly reattaches it.
"It's his favorite toy," she says of the suction piece to the long, skinny tubing that connects her tiny son to the portable ventilator that is always at his side, keeping him breathing.
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